EXCITING NEWS! We are pleased to announce our association with two leading research groups! Please contact us for more information.
- One of our patients has been accepted into the Leigh disease clinical treatment trial which is now being run at Stanford. Pllus others are currently being evaluated for inclusion and expansion of the trial.
- Dr Kendall is a clinical collaborator with University of FL and will be recruiting patients with PDH deficiency for a dichloroacetate treatment study.
In case you missed Dr Fran Kendall's MitoAction.org talk on Biopsies, click here for the MP3 file. Feedback has been awesome as everyone likes to be empowered by knowledge. See our Resources tab for a detailed handout on Biopsies or go to:
www.virtualmdpractice.com/musclebiopsy.html.
Dr Kendall was a presenter and on a number of panels at the UMDF Symposium in Scottsdale, AZ this past June. Details from the meeting will be in our next newsletter issue due to be released shortly. Please email us if you wish to be included in our newsletter releases and go to our Resource tab for our past editions.
Avoiding invasive, expensive muscle biopsies while providing more extensive & definitive results are recent advances in new non-invasive cheek swab enzymology studies & simple blood sample testing techniques. We are collaborating with several of these groups & if you would like further info, have questions about your current diagnosis or believe a specific gene diagnosis may prove useful to you - please contact us for details.
Check out our online presentations on our Lecture page - mito & autism, general overview of mito, and the dosing debate audio.
We are on Facebook (Virtual Medical Practice) and click "like" to stay up to date with important news or tools - click here for Facebook page.
We have created a 15 pg insiders guide to Muscle Biopsies that contains information to be aware of and questions you can ask the provider that you may be thinking of using for the biopsy. We believe in empowering patients so they can make informed decisions. Thanks to all who helped.
www.virtualmdpractice.com/musclebiopsy.html
A mom wrote in about how important our Patient Advocacy services were to her family and son. We thought it was a good idea, but had no idea how much. You can read the whole letter at our Patient Advocacy page by clicking here.
Click here for the abstract of a presentation at the ICIEM (Int'l Congress on Inborn Errors of Metabolism) hosted by the SIMD (Society of Inherited Metabolic Disorders) - MCT Oil Based Diet Reverses Hypertrophic Cardiomyopathy in a Patient with VLCADD
Our patient care does not end with appointments. Dr Kendall saw a few of her patients inpatient at a local hospital and she was consulted by staff at a hospital located outside the Atlanta metro area. If you or your child are hospitalized, please contact us as we are here to assist with your care.
Dr. Kendall was a guest lecturer at a national medical school presenting mitochondrial disorders to medical students. She welcomed this opportunity to created interest within the body of students and hopefully some students will chose to pursue genetics in their career since nationally we face a critical shortage of genetic physicians.
Dr. Kendall was honored to present
a well received lecture on Autism and Mitochondrial Disease for the North Fulton County Autism group. See our Lecture page for the slideshow and audio.
Dr. Kendall was elected to the Medical Advisory Committee for MitoAction, one of two national organizations dedicated to Mitochondrial Disease and awareness. Dr. Kendall is excited about working with many of her former Harvard colleagues on behalf of all of you. For more information on MitoAction go to www.mitoaction.org.
Our first metro-Atlanta house-call! Unfortunately, some children and adults with mito have overwhelming problems keeping them house-bound and often preventing them from getting the care they desperately need. For information about our house call services please contact us.
An insurance company reimburses 100% of our fee to patient minus typical co-pay. Another patient stated, "You'll find that handling your own insurance paperwork is well worth the tradeoff for getting comprehensive and real time information."
We have re-diagnosed several patients thought to have a mito disorder with a chromosome problem thru the use of advanced technology.
Rave reviews from patients on the quickness (4 weeks), cost, and accuracy of our biopsies. To read more about biopsies, please see our FAQ's on Genetic Testing page or our download at www.virtualmdpractice.com/musclebiopsy.html.
See and hear Dr. Fran D Kendall's "Overview of Mitochondrial Disorders" presentation to Georgia School Nurses in our About Us section.
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